Author Topic: M.E. ....What it means  (Read 25638 times)

Offline Lurching Dead

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Re: M.E. ....What it means
« Reply #25 on: February 09, 2009, 08:39:42 PM »
I get people take the p*ss out of my limp all the time - you develop thick skin eventually but sometimes ill informed comments have a way of striking home and really hurt  8:::

People are thick.

My daughter has a lazy eye and has to wear an eye patch over her good eye for a couple of hours a day. The amount of people who say to her "Are you a Pirate"? She's 5 next month. I like to tahnk them for their sensitivity and for not making a sweet innocent child overly self conscious of something that is in no way their fault. They usually have the good grace to go red.

What is it with people that they just seemed so scared of anything inthe least bit different?
"A woman drove me to drink and I didn't even have the decency to thank her." W.C. Fields

Bodhi

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Re: M.E. ....What it means
« Reply #26 on: February 10, 2009, 08:39:55 AM »
My daughter has a lazy eye and has to wear an eye patch over her good eye for a couple of hours a day. The amount of people who say to her "Are you a Pirate"?

Don't I know it? I spent a great deal of my childhood with just such an eyepatch. Still am crosseyed though...

My daughter chooses to stick out (Runs some sort of homemade Goth/punk/cosplayer style - very much tim Burton inspired) and is mostly slightly amused by the comments she gets but some of them are really over the top for comments you'd give a thirteen year old girl  :oops: And she gets threats six times a day. Bizarre that, over just pieces of clothing.
« Last Edit: February 10, 2009, 08:45:11 AM by Bodhi »

Offline Shaved Dwarf

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Re: M.E. ....What it means
« Reply #27 on: February 10, 2009, 09:59:49 AM »
I've spent years trying to understand people, especially those being mean or even cruel to others. Even so I didn't get far. My only result was that there are two kinds of those people: the ones that just like hurting others, because it makes them feel superior (at least for the moment), and the ones that are so stupid they don't even notice it. And that I can't change that.
Please don't feel sad, Sally. Both kind of those people aren't able to hold a candle to you.

Offline Lurching Dead

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Re: M.E. ....What it means
« Reply #28 on: February 10, 2009, 04:31:36 PM »
My daughter has a lazy eye and has to wear an eye patch over her good eye for a couple of hours a day. The amount of people who say to her "Are you a Pirate"?

Don't I know it? I spent a great deal of my childhood with just such an eyepatch. Still am crosseyed though...

My daughter chooses to stick out (Runs some sort of homemade Goth/punk/cosplayer style - very much tim Burton inspired) and is mostly slightly amused by the comments she gets but some of them are really over the top for comments you'd give a thirteen year old girl  :oops: And she gets threats six times a day. Bizarre that, over just pieces of clothing.

Good for your daughter I say Bodhi. I like it when people have the courage to stand out from the crowd. Sad that she get's threats though. There was a goth man killed in this country simply for being a goth not so long ago. Quite shocking really.

I sometimes look at my kids and wonder about the world we are handing over to them.

 :shrug:
"A woman drove me to drink and I didn't even have the decency to thank her." W.C. Fields

weirdwolf

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Re: M.E. ....What it means
« Reply #29 on: February 11, 2009, 02:08:09 PM »
Your right Sally, that comment was bloody mindless. Still, he deserves a snout'in for making it.

Admiration is to small a word when it comes to our Sally. How you cope with four children & a artistic husband... :whistle: :lol: is a true inspiration to me personally. The other night I took a fall getting out of bed when my legs just didn't want to play. I fell & smashed my face on the bed side drawers, losing four teeth & ended up looking like I've gone 20 rounds with Marvin Hagler. It was your situation that came into my head whilst I was laying on the floor. All I'll say it gave me a light to cling to when my mind was slipping into a dark pit.

Remember this Sally. For the one odious little tick that makes a comment you have a thousand followers. Your actions have proved time & time again that you have a heart of gold. Madam you have my respect ten fold.

I don't mean to sound harsh here people. This post is my way of saying thank you to Sally even though she had no knowledge that she had helped out. I'm not looking for pity or sympathies of any sort. I'm harsh with myself & that is helping me cope with M.E/ CFS. A old soldier may still crawl & bite peoples ankles, if you know what I mean... :wink:

Offline Hasslefriesian

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Re: M.E. ....What it means
« Reply #30 on: February 11, 2009, 02:19:05 PM »
....I fell & smashed my face on the bed side drawers, losing four teeth & ended up looking like I've gone 20 rounds with Marvin Hagler.

 :shock: :crazy: Ouch!
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perceptionistruth

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Re: M.E. ....What it means
« Reply #31 on: February 11, 2009, 02:36:09 PM »
Not that I need to say but that is totally out of order. Its the media that has drummed up a lot of this though and they neglect to inform the world that there are actually quite a few medical conditions and even genes that can afflict people.

And frankly, it shouldn't matter to anyone the reason for people being the weight they are.  I'm overweight, I know why, it's my business.  It may be because I eat too many pies, it may be because I don't exercise enough, it may be because I have a medical condition, it may be because genetically I'm predisposed to being this size with the lifestyle I have.  But it's still my life, not theirs to judge.  Even if it *is* because I eat too much pizza, drink too much beer and don't exercise then they still have no right to judge, because everyone's life is their own to live.

perceptionistruth

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Re: M.E. ....What it means
« Reply #32 on: February 11, 2009, 02:39:45 PM »
What is it with people that they just seemed so scared of anything inthe least bit different?

Natural self defence mechanism we have left over from then we were animals.  However, we were also gifted with the ability to think before we speak which is a feature decent people use to moderate our baser instincts.

Some people however are too lazy, sadly.

Offline Lurching Dead

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Re: M.E. ....What it means
« Reply #33 on: February 11, 2009, 03:28:59 PM »
Hope you're okay now WW.

Are you healing?
That fall sounded pretty serious.
"A woman drove me to drink and I didn't even have the decency to thank her." W.C. Fields

Offline DRAGON

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Re: M.E. ....What it means
« Reply #34 on: February 11, 2009, 04:57:05 PM »
 :metoo: Maybe it's time you invested in a padded cell ! :lol:
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Offline weareblind

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Re: M.E. ....What it means
« Reply #35 on: February 11, 2009, 04:59:56 PM »
Hope you're okay now WW.

Are you healing?
That fall sounded pretty serious.
Are you talking about this other thread?
http://forum-of-doom.com/index.php?topic=10290.0
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Offline Lurching Dead

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Re: M.E. ....What it means
« Reply #36 on: February 11, 2009, 06:16:57 PM »
Hope you're okay now WW.

Are you healing?
That fall sounded pretty serious.
Are you talking about this other thread?
http://forum-of-doom.com/index.php?topic=10290.0

No weareblind,

I was talking about WW's earlier post:

The other night I took a fall getting out of bed when my legs just didn't want to play. I fell & smashed my face on the bed side drawers, losing four teeth & ended up looking like I've gone 20 rounds with Marvin Hagler.

Sorry. I didn't put the quote in.   :oops:
"A woman drove me to drink and I didn't even have the decency to thank her." W.C. Fields

Offline weareblind

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Re: M.E. ....What it means
« Reply #37 on: February 11, 2009, 06:55:34 PM »
Ah, ops, you're right... Sorry I didn't read this post of WW because I talked about this incident with him...
 :oops:
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Offline Brandlin

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Re: M.E. ....What it means
« Reply #38 on: February 12, 2009, 01:38:19 AM »
.....an example is the questionaire at Christmas that people filled in, under the section "anything else we can do/do better/stop doing" someone wrote."stop eating please Sally".  That hurt, especially as it is a long-standing customer.

You didn't tell me about that.

I hope they don't live too close to us.

Or any other fodder
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Offline Ben Brownlie

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Re: M.E. ....What it means
« Reply #39 on: February 12, 2009, 01:56:40 AM »
Bearing mind the amount of pillocks in our hobby it could well be someone said it thinking it was funny and not realising it was offensive... perhaps

Offline sagunt

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Re: M.E. ....What it means
« Reply #40 on: February 12, 2009, 12:26:35 PM »
Bearing mind the amount of pillocks in our hobby it could well be someone said it thinking it was funny and not realising it was offensive... perhaps
That was my thought, more or less.  Of course, my absence up to now and weighing in as an apologist may look suspicious, but trust me, I'm a dedicated fan of Sally.

Regards the stupidity and insensitivity of others:  I suspect we've all got experiences which are shocking in their blatant disregard for humanity.  Just last week one of my students made a cutting remark about bipolars.  Without knowing, they labeled me that not based on actual knowledge or astute observations, only flippant generalisation.  I didn't tell them how right they'd been, but it does hurt to fall within a group identified with prejudice.

Another possible explanation could be Sally's customer mistakenly dropped out a word or phrase which would've made it clearly an attempt at humour - though still a poor topic for such.

Hybrid

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Re: M.E. ....What it means
« Reply #41 on: February 12, 2009, 12:32:07 PM »


Natural self defence mechanism we have left over from then we were animals.  However, we were also gifted with the ability to think before we speak which is a feature decent people use to moderate our baser instincts.

Some people however are too lazy, sadly.
[/quote]
Better yet, we can think before we type. it actually requires more effort.
I know it hurt bleeping bleepers do that so very well. If I may, I would like to share a little trick I made up being a social retard back in elementry school.
Sally, think of it this way, does his opinion really count? If he one day never said another word to you would it sadden you? If not (g-rating it) then they can go take a walk, if you catch my meaning.

Weird Wolf, sorry to hear about your fall there, hope they gave you some decent meds or something to dull the pain.

Bodhi

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Re: M.E. ....What it means
« Reply #42 on: February 12, 2009, 02:16:30 PM »
Bearing mind the amount of pillocks in our hobby it could well be someone said it thinking it was funny and not realising it was offensive... perhaps

Indeed such things happen quite often. It helps to bear in mind that others have problems to. I had a friend with an Aspbergers diagnosis who had this "talent" of making everybody dislike him within a space of a ten minute conversation by saying all the socially "wrong" things possible. But really he had a handicap and no way of "reading" social signals we other take for granted. Noone saw it though since he appeared "normal" in most other ways.

Offline Lurching Dead

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Re: M.E. ....What it means
« Reply #43 on: February 12, 2009, 04:22:34 PM »
Bearing mind the amount of pillocks in our hobby it could well be someone said it thinking it was funny and not realising it was offensive... perhaps

Indeed such things happen quite often. It helps to bear in mind that others have problems to. I had a friend with an Aspbergers diagnosis who had this "talent" of making everybody dislike him within a space of a ten minute conversation by saying all the socially "wrong" things possible. But really he had a handicap and no way of "reading" social signals we other take for granted. Noone saw it though since he appeared "normal" in most other ways.

I hear you there Bodhi. Most of the young people I am working with at the moment have Asperger's and it can sometimes make their life absolute hell. They can get quite a lot of negative responses form those around them.

Personally, i really enjoy working with them for the most part. It makes you thinkl about how you act and speak, as it's so easy to say something that they dont' get.
"A woman drove me to drink and I didn't even have the decency to thank her." W.C. Fields

Offline sagunt

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Re: M.E. ....What it means
« Reply #44 on: February 12, 2009, 05:14:01 PM »
Have you read Curious Incident of the Dog in the Nighttime?  Does it fit your eexperience?  Is it believable?

Offline mcfonz

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Re: M.E. ....What it means
« Reply #45 on: February 12, 2009, 07:51:35 PM »
I have been to school with kids with aspergers and have and now work with kids which have aspergers.

Curious Incident of the Dog in the Nightime is representational of some but not all. I would say that the character portrayed in the book is more autistic.

But the autistic spectrum is a bit of a big basket. One end of it you have cases like Rainman or worse where their level of functionality is hampered by their symptoms. Aspergus again varies in its severity - and whilst you get some people with it that only display small signs others are more obvious. Aspergus tends to be considered low level autistic spectrum but where the boundry is between being aspergic and full on autistic is do not ask me . . . . . I have tried to research it but it's all very very "loose" in defenition.

The other problem I found is that there are other things out there that are similar in many ways to aspergers such as Dispraxia. Not to mention the number of different defenitions or symptoms . . . .
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Bodhi

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Re: M.E. ....What it means
« Reply #46 on: February 12, 2009, 08:19:28 PM »
Heh. I've worked with aspbergers kids to. Small world  :wink:
These days I mostly work with kids who have problems with aggresion control so rarely aspbergers diagnosises among them, more often ADHD and DAMP. But the diagnosis is a very very small part of the learning to know the individuals.

Offline Lurching Dead

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Re: M.E. ....What it means
« Reply #47 on: February 13, 2009, 09:07:03 AM »
I have been to school with kids with aspergers and have and now work with kids which have aspergers.

Curious Incident of the Dog in the Nightime is representational of some but not all. I would say that the character portrayed in the book is more autistic.

But the autistic spectrum is a bit of a big basket. One end of it you have cases like Rainman or worse where their level of functionality is hampered by their symptoms. Aspergus again varies in its severity - and whilst you get some people with it that only display small signs others are more obvious. Aspergus tends to be considered low level autistic spectrum but where the boundry is between being aspergic and full on autistic is do not ask me . . . . . I have tried to research it but it's all very very "loose" in defenition.

The other problem I found is that there are other things out there that are similar in many ways to aspergers such as Dispraxia. Not to mention the number of different defenitions or symptoms . . . .

 :metoo:

The thing is, the Autistic Spectrum is huge. No person with Asperger's is the same as another. Diagnosis is very tricky to get your head around as well, as you can have Asperger Traits etc. in an attempt to classify your level of severity.....  :whistle:

Also, other issues can mimic the symptoms. THere is cross over in a lot of these difficulties, making diagnosis challenging. ADHD, Dyspraxia, Attachment Disorder can all have similar effects on a young person.

The Curious Incident is at least an extreme case of Asperger's and at best someone who is Autistic. Still a good read though.

If anyopne wants more info on Asperger's, I'm no expert, but I'm sure I've got some stuff I could dig out somewhere and make available to people.

@ Bodhi... small world mate. Perhaps we should start up a business together...  :silly
"A woman drove me to drink and I didn't even have the decency to thank her." W.C. Fields

Offline mcfonz

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Re: M.E. ....What it means
« Reply #48 on: February 13, 2009, 09:43:26 AM »
Lurching D - sounds like you have a similar profession to me!

I work at a kids home these days. I have been looking into Aspergers as part of my NVQ and retrospectively on a young person I used to work at a school with during my shortish (6month) stint as a teaching assistant.

He had aspergers but to me did not give any of the strong tell-tale signs of it. Socialising was good - was just nervous / anxious in new situations but given his background that is not nessisarily aspbergers. Having looked into it I suppose there is an argument that he could be both aspergers and dispraxic but not a great example of either!

Then ofcourse as you say - there is the attatchment theory which is effectively a theory that sort of backs up the old but not nessisarily inaccurate "nature or nurture".

Wow this conversation is getting to be quite awesome!

As for aspergic traits apparently their is quite a high percentage of the population that present with aspergic traits - can't remember off the top of my head exactly what although I remember that it is more prevelent in males. I can understand that though if we are outnumbered by ladies - many a time I have felt unable to left my stare from my shoes to my mothers face!!!  :lmao:
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Marcus The Rogue

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Re: M.E. ....What it means
« Reply #49 on: October 22, 2009, 12:00:50 PM »
Hi Sally,

Just in case you missed this. Very interesting and hopeful I think. The Virus occurs in mice originally and has somehow crossed species.

http://www.wpinstitute.org/xmrv/docs/wpi_pressrel_100809.pdf


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